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Aging Action Initiative Our Families with Memory Loss

By Dana Pepp and Jim Ward

Everyone knows someone with dementia. It is estimated that up to 8,000 adults in Marin County are currently diagnosed with memory loss, and that number is growing rapidly as our population ages.

Luckily, Marin has various supports for families with memory loss: two high-quality adult day programs — Marin Adult Day Health Center and Senior Access — as well as many home care providers, including JFCS, that provide dementia care.

We say “families with memory loss,” because this journey really does affect the whole family, including friends and neighbors. In a recent survey, we asked respondents how many people are affected by their loved one’s memory loss. One caregiver responded: 24. Twenty-four people directly affected by one person’s diagnosis and journey into memory loss!

This journey is really challenging! There are lots of unknowns: daily ups and downs, plenty of stress and loss, but also plenty of laughs. At Senior Access, we support the caregivers by providing daily respite and support groups. We support clients by creating a loving, fun, engaging, social, and stimulating environment. We have created a program and a culture in which love, respect, compassion, and fun are valued.

Senior Access’ day programs as well as other family support services help loved ones age in place for as long as possible. The challenge we often face is that many families wait a long time — too long — to connect with respite and support services. Denial, resistance, and feeling that a loved one isn’t “old enough” or “ready enough” are common refrains. But the sooner families can connect with support services, the better for all involved.

The community-based programs and medical providers in Marin strive to work collaboratively to provide families with a menu of opportunities for loved ones. We meet quarterly to share best practices, build relationships, and streamline referrals. Through the Family Caregiver Support Program, administered by the Alzheimer’s Association, clients are provided free opportunities to try various support services throughout Marin. There are also currently researchers in Marin, including Drs. Bredesen and Ornish, working on lifestyle protocols to prevent and reduce symptoms of dementia.

Next time you speak with a friend, neighbor, or family member who is concerned about memory loss, please encourage them to visit their doctor for a neurological exam. And know that there are plenty of supports in Marin County for families with dementia.

Senior Access is celebrating 45 years supporting families with memory loss in Marin County. Please check out our video and website at www.senioraccess.org.